4/15/19

On April 22 Emma is scheduled to have back surgery(spinal fusion, lumbar and thoracic) for her scoliosis. It has been progressing rapidly for the last few years and another 15 degrees just in the last 6 months which can eventually negatively affect her heart and lungs. She has been cleared by all of her doctors; pending a spinal MRI scheduled in a few days, to have the surgery. Their biggest concern is that because of her restrictive lung disease her lungs won't tolerate it well and she will have to stay intubated for a few days after or even longer. We are praying this doesn't happen because it will make her recovery even harder which is already going to be long and painful. There are other possible complication because of her heart disease but that wouldn't be any fun to discuss. Needless to say, back surgery is already a lot to put someone through but because of all the added risks due to her other health issues we are asking for many prayers in her behalf. We will keep you updated through this site. 

A few weeks ago Emma had to have a Cardiac Cath to be sure her heart would be able to handle this surgery and we received so much love and support that is confirmed what I already knew; that we have the best support system in the world! Family and friends reached out and were there in anyway they could and even after only living in Lancaster for the last 8 months we received an out pour of love from our new friends here. Thank you for your love for our family and the constant strength you have given. We love you!